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Barriers to qualitative dementia research: the elephant in the room

Journal Article


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Abstract


  • As our population is aging, the global prevalence of dementia is rising. Recent extensive reviews of the dementia literature highlight a clear need for additional qualitative research to address the experiences of people with dementia and their carers. To date, the vast majority of published dementia research is quantitative in nature and, perhaps not surprisingly, attracts the bulk of government funding. In contrast, qualitative dementia research is poorly resourced and less frequently published. Although a myriad of factors are responsible for this dichotomy, we propose that inadequate funding represents the “elephant in the room” of dementia research. In this article, we describe and emphasize the need for qualitative dementia research, highlight existing barriers, and outline potential solutions. Examples of barriers are provided and theoretical underpinnings are proposed.

Publication Date


  • 2015

Citation


  • Carmody, J., Traynor, V. & Marchetti, E. (2015). Barriers to qualitative dementia research: the elephant in the room. Qualitative Health Research, 25 (7), 1013-1019.

Scopus Eid


  • 2-s2.0-84930535827

Ro Full-text Url


  • http://ro.uow.edu.au/cgi/viewcontent.cgi?article=3421&context=smhpapers

Ro Metadata Url


  • http://ro.uow.edu.au/smhpapers/2402

Has Global Citation Frequency


Number Of Pages


  • 6

Start Page


  • 1013

End Page


  • 1019

Volume


  • 25

Issue


  • 7

Place Of Publication


  • United States

Abstract


  • As our population is aging, the global prevalence of dementia is rising. Recent extensive reviews of the dementia literature highlight a clear need for additional qualitative research to address the experiences of people with dementia and their carers. To date, the vast majority of published dementia research is quantitative in nature and, perhaps not surprisingly, attracts the bulk of government funding. In contrast, qualitative dementia research is poorly resourced and less frequently published. Although a myriad of factors are responsible for this dichotomy, we propose that inadequate funding represents the “elephant in the room” of dementia research. In this article, we describe and emphasize the need for qualitative dementia research, highlight existing barriers, and outline potential solutions. Examples of barriers are provided and theoretical underpinnings are proposed.

Publication Date


  • 2015

Citation


  • Carmody, J., Traynor, V. & Marchetti, E. (2015). Barriers to qualitative dementia research: the elephant in the room. Qualitative Health Research, 25 (7), 1013-1019.

Scopus Eid


  • 2-s2.0-84930535827

Ro Full-text Url


  • http://ro.uow.edu.au/cgi/viewcontent.cgi?article=3421&context=smhpapers

Ro Metadata Url


  • http://ro.uow.edu.au/smhpapers/2402

Has Global Citation Frequency


Number Of Pages


  • 6

Start Page


  • 1013

End Page


  • 1019

Volume


  • 25

Issue


  • 7

Place Of Publication


  • United States