This paper outlines the motivation for and the development of a medication management information
resource for Australian ethnic minority informal caregivers of people living with dementia. The aim of this
project is to enable ethnic minority informal caregivers to safely and effectively manage medications for
their care recipient living with dementia in the community setting.
A large number of Australian informal caregivers of people living with dementia are from ethnic minority
backgrounds. Medication management is a common, but often times complex, daily task undertaken by
many informal caregivers. Since many of the caregiver’s medication management responsibilities increase
as the cognitive capabilities of their care recipients’ decline with advancing dementia and no
comprehensive dementia specific medication management information resource currently exists we felt it
important to develop a useful, accessible information resource for informal caregivers in this role.
The development of this medication management information resource occurred in two stages; the first
stage involved a qualitative study to gain insight into the perspectives and the information needs of these
ethnic minority informal caregivers as they manage medications for their care recipient. The results and
main themes identified in this first stage were then used to inform the second stage of the study which
involved the development of the medication management information resource, to be available online in
both English and Italian. These are nearing completion and will be evaluated before becoming generally
available online. It is anticipated that this information resource will provide family caregivers of people with
dementia information and support in this role.