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Knowledge, help-seeking and efficacy to find respite services: an exploratory study in help-seeking carers of people with dementia in the context of aged care reforms

Journal Article


Abstract


  • Background

    Research highlights the need for carers of people with dementia to acquire relevant and timely information to assist them to access appropriate respite services. Unfortunately, negative experiences of information-seeking can create additional stress for carers and contribute to delays in up-take, or not using respite services at all.

    Methods

    Cross-sectional survey data was collected from a convenience sample of n = 84 carers of older people with dementia living in the Illawarra-Shoalhaven region of NSW, Australia. We assessed knowledge, attitudes, information seeking behaviours, and unmet need for respite services in 2016, following national aged care reforms.

    Results

    Over the previous 12 months, 86% of carers sought respite service information. The majority (73%) of all carers reported an unmet need for respite services, and were relying on personal networks to provide support for respite information. Few utilised the new government gateway ‘My Aged Care’ phone line (11%) or website (25%). However, 35% used a pre-existing helpline to access short term or emergency respite. We found a preference for interpersonal information sources, including local doctor (65%), professionally and volunteer led carer support groups (49%), and family and friends (46%). Those using four or more information sources showed higher capacity to name local respite services. Respite service information seekers were more likely to be caring for someone with behavioural problems, to have received assistance to access services, and to have used respite services in the past 3 to 6 months.

    Conclusions

    New reforms in the Australian aged care sector have not adequately responded to the needs of carers of people with dementia for respite service information and support. Wider, community-based messaging promoting positive service options and the provision of active personal support is required to address the unmet need for respite in carers of people with dementia.

Authors


  •   Phillipson, Lyn J.
  •   Johnson, Kirsten (external author)
  •   Preston, Elizabeth (external author)
  •   Hall, Danika (external author)
  •   Neville, Christine (external author)
  •   Fielding, Elaine (external author)
  •   Hasan, Helen M.

Publication Date


  • 2019

Citation


  • L. Phillipson, K. Johnson, E. Cridland, D. Hall, C. Neville, E. Fielding & H. Hasan, "Knowledge, help-seeking and efficacy to find respite services: an exploratory study in help-seeking carers of people with dementia in the context of aged care reforms", BMC Geriatrics 19 2 (2019) 1-9.

Scopus Eid


  • 2-s2.0-85059733795

Number Of Pages


  • 8

Start Page


  • 1

End Page


  • 9

Volume


  • 19

Issue


  • 2

Place Of Publication


  • United Kingdom

Abstract


  • Background

    Research highlights the need for carers of people with dementia to acquire relevant and timely information to assist them to access appropriate respite services. Unfortunately, negative experiences of information-seeking can create additional stress for carers and contribute to delays in up-take, or not using respite services at all.

    Methods

    Cross-sectional survey data was collected from a convenience sample of n = 84 carers of older people with dementia living in the Illawarra-Shoalhaven region of NSW, Australia. We assessed knowledge, attitudes, information seeking behaviours, and unmet need for respite services in 2016, following national aged care reforms.

    Results

    Over the previous 12 months, 86% of carers sought respite service information. The majority (73%) of all carers reported an unmet need for respite services, and were relying on personal networks to provide support for respite information. Few utilised the new government gateway ‘My Aged Care’ phone line (11%) or website (25%). However, 35% used a pre-existing helpline to access short term or emergency respite. We found a preference for interpersonal information sources, including local doctor (65%), professionally and volunteer led carer support groups (49%), and family and friends (46%). Those using four or more information sources showed higher capacity to name local respite services. Respite service information seekers were more likely to be caring for someone with behavioural problems, to have received assistance to access services, and to have used respite services in the past 3 to 6 months.

    Conclusions

    New reforms in the Australian aged care sector have not adequately responded to the needs of carers of people with dementia for respite service information and support. Wider, community-based messaging promoting positive service options and the provision of active personal support is required to address the unmet need for respite in carers of people with dementia.

Authors


  •   Phillipson, Lyn J.
  •   Johnson, Kirsten (external author)
  •   Preston, Elizabeth (external author)
  •   Hall, Danika (external author)
  •   Neville, Christine (external author)
  •   Fielding, Elaine (external author)
  •   Hasan, Helen M.

Publication Date


  • 2019

Citation


  • L. Phillipson, K. Johnson, E. Cridland, D. Hall, C. Neville, E. Fielding & H. Hasan, "Knowledge, help-seeking and efficacy to find respite services: an exploratory study in help-seeking carers of people with dementia in the context of aged care reforms", BMC Geriatrics 19 2 (2019) 1-9.

Scopus Eid


  • 2-s2.0-85059733795

Number Of Pages


  • 8

Start Page


  • 1

End Page


  • 9

Volume


  • 19

Issue


  • 2

Place Of Publication


  • United Kingdom