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Testing an Easy Read Version of the Adult Social Care Outcomes Toolkit to assess quality of life in community dwelling older people with cognitive impairment

Conference Paper


Abstract


  • Understanding the extent to which social care

    is supporting choice and quality of life for

    community dwelling older people is critical in an

    aging society. Given the rising numbers of older

    people with dementia the development of inclusive

    methods which support valid and reliable outcome

    assessment is also imperative. This paper reports on the adaptation and cognitive

    testing of an Easy Read version of the Adult Social

    Care Outcomes Toolkit (ASCOT-ER), originally

    developed for adults with intellectual disabilities

    and autism. The survey was used to assess

    the care-related quality of life of community

    dwelling older people with cognitive impairment

    , receiving Home Care Packages in a region of

    NSW (Australia). Cognitive interviewing was

    used to explore the appropriateness of pictures,

    wording and visual scales to assess outcomes in:

    control over daily life; accommodation cleanliness

    and comfort; personal cleanliness and comfort;

    safety; social participation; occupation and dignity.

    Following an initial set of interviews (n=16), minor changes were made to some pictures and one

    set of response options to better suit an older

    audience. Re-testing with additional participants

    (n= 10) confirmed that amendments were useful

    in improving the suitability of the measure for

    this population. Interviews provided insights into

    factors influencing areas of need for older people

    in the domains of control over daily life, social

    participation and occupation. The value of using

    the ASCOT-ER to enable more older people to give

    their own views of their quality of life is discussed.

Authors


  •   Phillipson, Lyn J.
  •   Caiels, James (external author)
  •   Kent, Ann-Marie (external author)
  •   Jenkins, Susan (external author)

Publication Date


  • 2018

Citation


  • L. Phillipson, J. Caiels, A. Kent & S. Jenkins, "Testing an Easy Read Version of the Adult Social Care Outcomes Toolkit to assess quality of life in community dwelling older people with cognitive impairment", 47th Annual Conference of the British Society of Gerontology. (2018)

Abstract


  • Understanding the extent to which social care

    is supporting choice and quality of life for

    community dwelling older people is critical in an

    aging society. Given the rising numbers of older

    people with dementia the development of inclusive

    methods which support valid and reliable outcome

    assessment is also imperative. This paper reports on the adaptation and cognitive

    testing of an Easy Read version of the Adult Social

    Care Outcomes Toolkit (ASCOT-ER), originally

    developed for adults with intellectual disabilities

    and autism. The survey was used to assess

    the care-related quality of life of community

    dwelling older people with cognitive impairment

    , receiving Home Care Packages in a region of

    NSW (Australia). Cognitive interviewing was

    used to explore the appropriateness of pictures,

    wording and visual scales to assess outcomes in:

    control over daily life; accommodation cleanliness

    and comfort; personal cleanliness and comfort;

    safety; social participation; occupation and dignity.

    Following an initial set of interviews (n=16), minor changes were made to some pictures and one

    set of response options to better suit an older

    audience. Re-testing with additional participants

    (n= 10) confirmed that amendments were useful

    in improving the suitability of the measure for

    this population. Interviews provided insights into

    factors influencing areas of need for older people

    in the domains of control over daily life, social

    participation and occupation. The value of using

    the ASCOT-ER to enable more older people to give

    their own views of their quality of life is discussed.

Authors


  •   Phillipson, Lyn J.
  •   Caiels, James (external author)
  •   Kent, Ann-Marie (external author)
  •   Jenkins, Susan (external author)

Publication Date


  • 2018

Citation


  • L. Phillipson, J. Caiels, A. Kent & S. Jenkins, "Testing an Easy Read Version of the Adult Social Care Outcomes Toolkit to assess quality of life in community dwelling older people with cognitive impairment", 47th Annual Conference of the British Society of Gerontology. (2018)