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Sibling involvement in childhood chronic heart disease through a bead program

Journal Article


Abstract


  • In interviews with parents for the evaluation of a cardiac ward programme in a children’s hospital,

    a number of parents mentioned the role of the Heart Beads Program in including siblings in the

    hospitalisation of the child with congenital heart condition (CHD). Inclusion of siblings in the

    events surrounding the child with the cardiac condition was of two kinds: (a) touching and

    explaining about the beads and the child’s condition and (b) involvement in collecting and

    threading the beads. Discussion of the needs of siblings suggests that inclusion of siblings in

    activities related to the care and understanding of the CHD child as well as the creation and

    shaping of the family narrative is important. These cases illustrate the different ways in which

    siblings are involved and acknowledged and how involvement can be facilitated by a programme

    like Heart Beads.

UOW Authors


Publication Date


  • 2012

Citation


  • Redshaw, S. & Wilson, V. (2012). Sibling involvement in childhood chronic heart disease through a bead program. Journal of Child Health Care, 16 (1), 53-61.

Scopus Eid


  • 2-s2.0-84861116120

Number Of Pages


  • 8

Start Page


  • 53

End Page


  • 61

Volume


  • 16

Issue


  • 1

Place Of Publication


  • United Kingdom

Abstract


  • In interviews with parents for the evaluation of a cardiac ward programme in a children’s hospital,

    a number of parents mentioned the role of the Heart Beads Program in including siblings in the

    hospitalisation of the child with congenital heart condition (CHD). Inclusion of siblings in the

    events surrounding the child with the cardiac condition was of two kinds: (a) touching and

    explaining about the beads and the child’s condition and (b) involvement in collecting and

    threading the beads. Discussion of the needs of siblings suggests that inclusion of siblings in

    activities related to the care and understanding of the CHD child as well as the creation and

    shaping of the family narrative is important. These cases illustrate the different ways in which

    siblings are involved and acknowledged and how involvement can be facilitated by a programme

    like Heart Beads.

UOW Authors


Publication Date


  • 2012

Citation


  • Redshaw, S. & Wilson, V. (2012). Sibling involvement in childhood chronic heart disease through a bead program. Journal of Child Health Care, 16 (1), 53-61.

Scopus Eid


  • 2-s2.0-84861116120

Number Of Pages


  • 8

Start Page


  • 53

End Page


  • 61

Volume


  • 16

Issue


  • 1

Place Of Publication


  • United Kingdom