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Families living with autism spectrum disorder: roles and responsibilities of adolescent sisters

Journal Article


Abstract


  • There is currently a limited understanding of adolescent sibling relationships where Autism Spectrum Disorder (ASD) is present. This research gap remains despite preliminary findings suggesting that neurotypically developing (NTD) siblings undertake extra caregiving responsibilities and experience differential treatment from family members. Using a Family Systems approach, this qualitative study investigated NTD adolescent sisters’ roles and responsibilities for their younger adolescent brother with ASD from the perspectives of 11 family members (including NTD sisters, brothers with ASD, mothers, and fathers). Findings indicate the sisters undertook various caregiving roles and responsibilities, particularly at school, which had both positive and negative influences on the family system. Additionally, sisters perceived they undertook unfair household responsibilities, received reduced parental attention, and desired both distance from and engagement with their families. These perceptions varied amongst other family members. Implications of these findings and strategies for best supporting adolescent NTD siblings are discussed.

UOW Authors


  •   Preston, Elizabeth (external author)
  •   Jones, Sandra C. (external author)
  •   Stoyles, Gerard J. (external author)
  •   Caputi, Peter
  •   Magee, Christopher (external author)

Publication Date


  • 2016

Citation


  • Cridland, E. K., Jones, S. C., Stoyles, G., Caputi, P. & Magee, C. A. (2016). Families living with autism spectrum disorder: roles and responsibilities of adolescent sisters. Focus on Autism and Other Developmental Disabilities, 31 (3), 196-207.

Scopus Eid


  • 2-s2.0-84981321220

Ro Metadata Url


  • http://ro.uow.edu.au/buspapers/892

Has Global Citation Frequency


Number Of Pages


  • 11

Start Page


  • 196

End Page


  • 207

Volume


  • 31

Issue


  • 3

Place Of Publication


  • United States

Abstract


  • There is currently a limited understanding of adolescent sibling relationships where Autism Spectrum Disorder (ASD) is present. This research gap remains despite preliminary findings suggesting that neurotypically developing (NTD) siblings undertake extra caregiving responsibilities and experience differential treatment from family members. Using a Family Systems approach, this qualitative study investigated NTD adolescent sisters’ roles and responsibilities for their younger adolescent brother with ASD from the perspectives of 11 family members (including NTD sisters, brothers with ASD, mothers, and fathers). Findings indicate the sisters undertook various caregiving roles and responsibilities, particularly at school, which had both positive and negative influences on the family system. Additionally, sisters perceived they undertook unfair household responsibilities, received reduced parental attention, and desired both distance from and engagement with their families. These perceptions varied amongst other family members. Implications of these findings and strategies for best supporting adolescent NTD siblings are discussed.

UOW Authors


  •   Preston, Elizabeth (external author)
  •   Jones, Sandra C. (external author)
  •   Stoyles, Gerard J. (external author)
  •   Caputi, Peter
  •   Magee, Christopher (external author)

Publication Date


  • 2016

Citation


  • Cridland, E. K., Jones, S. C., Stoyles, G., Caputi, P. & Magee, C. A. (2016). Families living with autism spectrum disorder: roles and responsibilities of adolescent sisters. Focus on Autism and Other Developmental Disabilities, 31 (3), 196-207.

Scopus Eid


  • 2-s2.0-84981321220

Ro Metadata Url


  • http://ro.uow.edu.au/buspapers/892

Has Global Citation Frequency


Number Of Pages


  • 11

Start Page


  • 196

End Page


  • 207

Volume


  • 31

Issue


  • 3

Place Of Publication


  • United States