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Understanding burn injuries in Aboriginal and Torres Strait Islander children: protocol for a prospective cohort study

Journal Article


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Abstract


  • Introduction: Although Aboriginal and Torres Strait

    Islander children in Australia have higher risk of burns

    compared with non-Aboriginal children, their access to

    burn care, particularly postdischarge care, is poorly

    understood, including the impact of care on functional

    outcomes. The objective of this study is to describe the

    burden of burns, access to care and functional outcomes

    in Aboriginal and Torres Strait Islander children in

    Australia, and develop appropriate models of care.

    Methods and analysis: All Aboriginal and Torres Strait

    Islander children aged under 16 years of age (and their

    families) presenting with a burn to a tertiary paediatric

    burn unit in 4 Australian States (New South Wales

    (NSW), Queensland, Northern Territory (NT), South

    Australia (SA)) will be invited to participate. Participants

    and carers will complete a baseline questionnaire; followups

    will be completed at 3, 6, 12 and 24 months. Data

    collected will include sociodemographic information; out

    of pocket costs; functional outcome; and measures of

    pain, itch and scarring. Health-related quality of life will

    be measured using the PedsQL, and impact of injury

    using the family impact scale. Clinical data and treatment

    will also be recorded. Around 225 participants will be

    recruited allowing complete data on around 130 children.

    Qualitative data collected by in-depth interviews with

    families, healthcare providers and policymakers will

    explore the impact of burn injury and outcomes on family

    life, needs of patients and barriers to healthcare;

    interviews with families will be conducted by experienced

    Aboriginal research staff using Indigenous

    methodologies. Health systems mapping will describe

    the provision of care.

Authors


  •   Ivers, Rebecca Q. (external author)
  •   Hunter, Kate (external author)
  •   Clapham, Kathleen F.
  •   Coombes, Julieann (external author)
  •   Fraser, Sarah (external author)
  •   Lo, Serigne (external author)
  •   Gabbe, Belinda (external author)
  •   Hendrie, Delia (external author)
  •   Read, David (external author)
  •   Kimble, Roy (external author)
  •   Sparnon, Anthony (external author)
  •   Stockton, Kellie (external author)
  •   Simpson, Renee (external author)
  •   Quinn, Linda (external author)
  •   Towers, Kurt (external author)
  •   Potokar, Tom (external author)
  •   Mackean, Tamara (external author)
  •   Grant, Julian (external author)
  •   Lyons, Ronan A. (external author)
  •   Jones, Lindsey (external author)
  •   Eades, Sandra (external author)
  •   Daniels, John
  •   Holland, Andrew J A. (external author)

Publication Date


  • 2015

Citation


  • R. Q. Ivers, K. Hunter, K. Clapham, J. Coombes, S. Fraser, S. Lo, B. Gabbe, D. Hendrie, D. Read, R. Kimble, A. Sparnon, K. Stockton, R. Simpson, L. Quinn, K. Towers, T. Potokar, T. Mackean, J. Grant, R. A. Lyons, L. Jones, S. Eades, J. Daniels & A. J A. Holland, "Understanding burn injuries in Aboriginal and Torres Strait Islander children: protocol for a prospective cohort study", BMJ Open 5 10 (2015) 009826-1-009826-7.

Scopus Eid


  • 2-s2.0-84945978535

Ro Full-text Url


  • http://ro.uow.edu.au/cgi/viewcontent.cgi?article=1708&context=ahsri

Ro Metadata Url


  • http://ro.uow.edu.au/ahsri/698

Start Page


  • 009826-1

End Page


  • 009826-7

Volume


  • 5

Issue


  • 10

Abstract


  • Introduction: Although Aboriginal and Torres Strait

    Islander children in Australia have higher risk of burns

    compared with non-Aboriginal children, their access to

    burn care, particularly postdischarge care, is poorly

    understood, including the impact of care on functional

    outcomes. The objective of this study is to describe the

    burden of burns, access to care and functional outcomes

    in Aboriginal and Torres Strait Islander children in

    Australia, and develop appropriate models of care.

    Methods and analysis: All Aboriginal and Torres Strait

    Islander children aged under 16 years of age (and their

    families) presenting with a burn to a tertiary paediatric

    burn unit in 4 Australian States (New South Wales

    (NSW), Queensland, Northern Territory (NT), South

    Australia (SA)) will be invited to participate. Participants

    and carers will complete a baseline questionnaire; followups

    will be completed at 3, 6, 12 and 24 months. Data

    collected will include sociodemographic information; out

    of pocket costs; functional outcome; and measures of

    pain, itch and scarring. Health-related quality of life will

    be measured using the PedsQL, and impact of injury

    using the family impact scale. Clinical data and treatment

    will also be recorded. Around 225 participants will be

    recruited allowing complete data on around 130 children.

    Qualitative data collected by in-depth interviews with

    families, healthcare providers and policymakers will

    explore the impact of burn injury and outcomes on family

    life, needs of patients and barriers to healthcare;

    interviews with families will be conducted by experienced

    Aboriginal research staff using Indigenous

    methodologies. Health systems mapping will describe

    the provision of care.

Authors


  •   Ivers, Rebecca Q. (external author)
  •   Hunter, Kate (external author)
  •   Clapham, Kathleen F.
  •   Coombes, Julieann (external author)
  •   Fraser, Sarah (external author)
  •   Lo, Serigne (external author)
  •   Gabbe, Belinda (external author)
  •   Hendrie, Delia (external author)
  •   Read, David (external author)
  •   Kimble, Roy (external author)
  •   Sparnon, Anthony (external author)
  •   Stockton, Kellie (external author)
  •   Simpson, Renee (external author)
  •   Quinn, Linda (external author)
  •   Towers, Kurt (external author)
  •   Potokar, Tom (external author)
  •   Mackean, Tamara (external author)
  •   Grant, Julian (external author)
  •   Lyons, Ronan A. (external author)
  •   Jones, Lindsey (external author)
  •   Eades, Sandra (external author)
  •   Daniels, John
  •   Holland, Andrew J A. (external author)

Publication Date


  • 2015

Citation


  • R. Q. Ivers, K. Hunter, K. Clapham, J. Coombes, S. Fraser, S. Lo, B. Gabbe, D. Hendrie, D. Read, R. Kimble, A. Sparnon, K. Stockton, R. Simpson, L. Quinn, K. Towers, T. Potokar, T. Mackean, J. Grant, R. A. Lyons, L. Jones, S. Eades, J. Daniels & A. J A. Holland, "Understanding burn injuries in Aboriginal and Torres Strait Islander children: protocol for a prospective cohort study", BMJ Open 5 10 (2015) 009826-1-009826-7.

Scopus Eid


  • 2-s2.0-84945978535

Ro Full-text Url


  • http://ro.uow.edu.au/cgi/viewcontent.cgi?article=1708&context=ahsri

Ro Metadata Url


  • http://ro.uow.edu.au/ahsri/698

Start Page


  • 009826-1

End Page


  • 009826-7

Volume


  • 5

Issue


  • 10