Daveson, Barbara

Overview

Dr Daveson is the Palliative Care Outcomes Collaboration’s National Director and Senior Research Fellow at the Australian Health Services Research Institute at University of Wollongong, Australia. Dr Daveson has published widely including on research conducted in Australia, Europe and the USA, and presented internationally. Her research includes: mixed methods, cohort studies, cross-national cross-sectional surveys, implementation science, outcome and assessment measurement, with often a focus on older adults and always a commitment to improving quality and equity. Dr Daveson has held academic, clinical, research and health service management posts in Australia and the UK. She has supervised a range of PhD candidates, including those with backgrounds in medicine, nursing and allied health.

Research Areas

1117 - PUBLIC HEALTH AND HEALTH SERVICES

Geographic Focus

Australia Country
International Transnational Region

Available as Research Supervisor

Available for Collaborative Projects

Member Of

PCOC culturally and linguistically diverse - research group Chair and member 2022

Selected Publications

Journal Article

Year	Title
2022	Appetite-Related Distress Is Burdensome in the Last Sixty Days of Life of People Receiving Palliative Care: A National Longitudinal Consecutive Cohort Study Published In Journal of Palliative Medicine
2022	Preferences of Older People With a Life-Limiting Illness: A Discrete Choice Experiment Published In Journal of Pain and Symptom Management
2021	Patient-reported outcome measurement of symptom distress is feasible in most clinical scenarios in palliative care: An observational study involving routinely collected data Published In International Journal for Quality in Health Care
2021	Sleeping-related distress in a palliative care population: A national, prospective, consecutive cohort Published In Palliative Medicine
2021	The PCOC symptom assessment scale (SAS): A valid measure for daily use at point of care and in palliative care programs Published In PLoS ONE
2020	Associations between informal care costs, care quality, carer rewards, burden and subsequent grief: the international, access, rights and empowerment mortality follow-back study of the last 3 months of life (IARE I study) Published In BMC Medicine
2020	Drivers of care costs and quality in the last 3 months of life among older people receiving palliative care: A multinational mortality follow-back survey across England, Ireland and the United States Published In Palliative Medicine
2020	Optimal Cancer Care for Aboriginal and Torres Strait Islander People: A Shared Approach to System Level Change Published In JCO Global Oncology
2019	Patterns of emergency department attendance among older people in the last three months of life and factors associated with frequent attendance: a mortality follow-back survey Published In AGE AND AGEING
2018	A National Priority: Improving Outcomes for Aboriginal and Torres Strait Islander People With Cancer Through an Optimal Care Pathway Published In Journal of Global Oncology
2018	A framework for complexity in palliative care: A qualitative study with patients, family carers and professionals Published In Palliative Medicine
2018	How can a measure improve assessment and management of symptoms and concerns for people with dementia in care homes? A mixed-methods feasibility and process evaluation of ipos-dem Published In PLoS One
2018	Improving Outcomes Through Principles of Best Practice Management: Australia's National Lung Cancer Framework Published In Journal of Global Oncology
2018	Perspectives of patients, family caregivers and health professionals on the use of outcome measures in palliative care and lessons for implementation: a multi-method qualitative study Published In Annals of Palliative Medicine
2018	Recommendations to reduce inequalities for LGBT people facing advanced illness: ACCESSCare national qualitative interview study Published In Palliative Medicine
2018	Strategies to address the shortcomings of commonly used advanced chronic heart failure descriptors to improve recruitment in palliative care research: A parallel mixed-methods feasibility study Published In Palliative Medicine
2018	Understanding how a palliative-specific patient-reported outcome intervention works to facilitate patient-centred care in advanced heart failure: A qualitative study Published In Palliative Medicine
2017	Development of a caregiver-reported measure to support systematic assessment of people with dementia in long-term care: The Integrated Palliative care Outcome Scale for Dementia Published In Palliative Medicine
2017	Feasibility and acceptability of a patient-reported outcome intervention in chronic heart failure Published In BMJ Supportive & Palliative Care
2017	How empowering is hospital care for older people with advanced disease? Barriers and facilitators from a cross-national ethnography in England, Ireland and the USA Published In Age and Ageing
2017	Music Therapy Assessment Tool for Awareness in Disorders of Consciousness: Assessment of Awareness in DOC Published In Archives of Physical Medicine and Rehabilitation
2017	Professional Supervision as Storied Experience: Narrative Analysis Findings for Australian-Based Registered Music Therapists Published In Journal of Music Therapy
2017	Social and clinical determinants of preferences and their achievement at the end of life: prospective cohort study of older adults receiving palliative care in three countries Published In BMC Geriatrics
2016	'I'll be in a safe place': A qualitative study of the decisions taken by people with advanced cancer to seek emergency department care Published In BMJ Open
2016	'My body's falling apart.' Understanding the experiences of patients with advanced multimorbidity to improve care: Serial interviews with patients and carers Published In BMJ Supportive and Palliative Care
2016	EAPC White Paper on outcome measurement in palliative care: Improving practice, attaining outcomes and delivering quality services - Recommendations from the European Association for Palliative Care (EAPC) Task Force on Outcome Measurement Published In Palliative Medicine
2016	Effects of professional music therapy supervision on clinical outcomes and therapist competency: a systematic review involving narrative synthesis Published In Nordic Journal of Music Therapy
2016	Factors associated with aggressive end of life cancer care Published In Supportive Care in Cancer
2016	Measures to assess commonly experienced symptoms for people with dementia in long-term care settings: A systematic review Published In BMC Medicine
2016	Music therapy assessment tool for awareness in disorders of consciousness (MATADOC): Reliability and Validity of a measure to assess awareness in patients with disorders of consciousness Published In Journal of Music Therapy
2016	Of apples and oranges: Lessons learned from the preparation of research protocols for systematic reviews exploring the effectiveness of Specialist Palliative Care Published In BMC Palliative Care
2016	The effectiveness and cost-effectiveness of inpatient specialist palliative care in acute hospitals for adults with advanced illness and their caregivers Published In Cochrane Database of Systematic Reviews
2016	“I’ll be in a safe place”: a qualitative study of the decisions taken by people with advanced cancer to seek emergency department care Published In BMJ Supportive & Palliative Care
2016	“What makes it worth the investment to say it?” – Care experiences of lesbian, gay, bisexual and/or trans* people facing life-limiting illness: a qualitative interview study Published In BMJ Supportive & Palliative Care
2015	A Systematic Review of the Use of the Palliative Care Outcome Scale and the Support Team Assessment Schedule in Palliative Care Published In Journal of Pain and Symptom Management
2015	Capture, transfer, and feedback of patient-centered outcomes data in palliative care populations: Does it make a difference? A systematic review Published In Journal of Pain and Symptom Management
2015	Emergency department attendance by patients with cancer in the last month of life: a systematic review and meta-analysis Published In The Lancet
2015	Emergency department attendance by patients with cancer in their last month of life: A systematic review and meta-analysis Published In Journal of Clinical Oncology
2015	Results of a transparent expert consultation on patient and public involvement in palliative care research Published In Palliative Medicine
2015	The effectiveness and cost‐effectiveness of inpatient specialist palliative care in acute hospitals for adults with advanced illness and their caregivers Published In Cochrane Database of Systematic Reviews
2015	The gap between policy and practice: a systematic review of patient-centred care interventions in chronic heart failure Published In Heart Failure Reviews
2015	The need for palliative care in ireland: A population-based estimate of palliative care using routine mortality data, inclusive of nonmalignant conditions Published In Journal of Pain and Symptom Management
2014	"A quiet still voice that just touches": Music's relevance for adults living with life-threatening cancer diagnoses Published In Supportive Care in Cancer
2014	Avoid prognostic paralysis-just get ahead and plan and co-ordinate care Published In npj Primary Care Respiratory Medicine
2014	Choosing care homes as the least preferred place to die: A cross-national survey of public preferences in seven European countries Published In BMC Palliative Care
2014	Coordination of end-of-life care for patients with lung cancer and those with advanced COPD: Are there transferable lessons? A longitudinal qualitative study Published In Primary Care Respiratory Journal
2014	Learning from the public: Citizens describe the need to improve end-of-life care access, provision and recognition across Europe Published In European Journal of Public Health
2014	Music Therapy Assessment Tool for Awareness in Disorders of Consciousness (MATADOC): Standardisation of the principal subscale to assess awareness in patients with disorders of consciousness Published In Neuropsychological Rehabilitation
2014	Place and Cause of Death in Centenarians: A Population-Based Observational Study in England, 2001 to 2010 Published In PLoS Medicine
2014	Priorities for treatment, care and information if faced with serious illness: A comparative population-based survey in seven European countries Published In Palliative Medicine
2014	Public preferences and priorities for end-of-life care in Kenya: A population-based street survey Published In BMC Palliative Care
2014	The real-world problem of care coordination: A longitudinal qualitative study with patients living with advanced progressive illness and their unpaid caregivers Published In PLoS One
2014	The real-world problem of care coordination: a longitudinal qualitative study with patients living with advanced progressive illness and their unpaid caregivers Published In BMC Health Services Research
2013	'Burden to others' as a public concern in advanced cancer: A comparative survey in seven European countries Published In BMC Cancer
2013	Coordination of care for individuals with advanced progressive conditions: A multi-site ethnographic and serial interview study Published In British Journal of General Practice
2013	If you had less than a year to live, would you want to know? A seven-country European population survey of public preferences for disclosure of poor prognosis Published In Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer
2013	The selection and use of outcome measures in palliative and end-of-life care research: The morecare international consensus workshop Published In Journal of Pain and Symptom Management
2013	To be involved or not to be involved: A survey of public preferences for self-involvement in decision-making involving mental capacity (competency) within Europe Published In Palliative Medicine
2012	Are we heading in the same direction? European and African doctors' and nurses' views and experiences regarding outcome measurement in palliative care Published In Palliative Medicine
2012	Enhancing patient-reported outcome measurement in research and practice of palliative and end-of-life care Published In Supportive Care in Cancer
2012	Outcomes 'out of africa': The selection and implementation of outcome measures for palliative care in Africa Published In BMC Palliative Care
2012	Preferences for place of death if faced with advanced cancer: A population survey in England, Flanders, Germany, Italy, The Netherlands, Portugal and Spain Published In Annals of Oncology
2012	Public opinion on preferences and priorities for end-of-life care in sub-Saharan Africa: piloting a novel method of street surveying Published In BMJ Supportive and Palliative Care
2012	Republished: Which questions of two commonly used multidimensional palliative care patient reported outcome measures are most useful? Results from the European and African PRISMA survey Published In Postgraduate Medical Journal
2012	Supervision for music therapists: An Australian cross-sectional survey regarding views and practices Published In Australian Journal of Music Therapy
2012	Systematic Review of the Primary Research on Minority Ethnic Groups and End-of-Life Care From the United Kingdom Published In JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
2012	Which questions of two commonly used multidimensional palliative care patient reported outcome measures are most useful? Results from the European and African PRISMA survey Published In BMJ supportive & palliative care
2011	Co-ordination of generalist care for patients towards the end of life: a literature review Published In BMJ Supportive & Palliative Care
2011	Co-ordination of generalist end of life care in the UK: a multi-site ethnographic study Published In BMJ Supportive & Palliative Care
2011	Constructing understandings of end-of-life care in Europe: A qualitative study involving cognitive interviewing with implications for cross-national surveys Published In Journal of Palliative Medicine
2011	Implementing patient reported outcome measures (PROMs) in palliative care - users' cry for help Published In Health and Quality of Life Outcomes
2011	Investigating the dimension of time: Findings from a modified grounded theory study about clients' experiences and descriptions of temporality or time within music therapy Published In Journal of Music Therapy
2011	Music therapy methods with children, adolescents, and adults with severe neurobehavioral disorders due to brain injury Published In Music Therapy Perspectives
2011	Promoting supportive and palliative care research by a management fellow Published In BMJ Supportive & Palliative Care
2011	The PRISMA symposium 1: Outcome tool use. Disharmony in European outcomes research for palliative and advanced disease care: Too many tools in practice Published In Journal of Pain and Symptom Management
2011	The PRISMA symposium 4: How should Europe progress end-of-life and palliative clinical care research? Recommendations from the proceedings Published In Journal of Pain and Symptom Management
2010	An audit about music therapy assessments and recommendations for adult patients suspected to be in a low awareness state Published In Journal of Music Therapy
2010	Verständnis von ¿end of life care¿ in England und Deutschland ¿ eine qualitative Pilot-Studie Published In Zeitschrift für Palliativmedizin
2009	Book Reviews Published In Nordic Journal of Music Therapy
2009	Music: Promoting health and creating community in healthcare contexts Published In NORDIC JOURNAL OF MUSIC THERAPY
2008	Indigenous music therapy theory building through grounded theory research: The developing indigenous theory framework Published In Arts in Psychotherapy
2007	A project investigating music therapy referral trends within palliative care: An Australian perspective Published In Journal of Music Therapy
2007	Music Therapy Methods in Neuro-Rehabilitation: A Clinician's Manual Published In MUSIC THERAPY PERSPECTIVES
2007	The music therapy assessment tool for low awareness states Published In International Journal of Therapy and Rehabilitation
2004	Music therapy student supervision: Considering aspects of resistance and parallel processes in the supervisory relationship with students in final clinical placement Published In Arts in Psychotherapy
2002	A philosophical inquiry into the role of rhythm in music therapy Published In Arts in Psychotherapy
2001	A descriptive study exploring the role of music therapy in prisons Published In Arts in Psychotherapy
2001	Music Therapy and Childhood Cancer: Goals, Methods, Patient Choice and Control During Diagnosis, Intensive Treatment, Transplant and Palliative Care Published In Music Therapy Perspectives
2000	Music therapy in palliative care for hospitalized children and adolescents Published In Journal of Palliative Care
1998	A role for music therapy in special education Published In International Journal of Disability, Development and Education

Chapter

Year	Title
2016	Charting the Terrain of Grounded Theory Research in Music Therapy: Where We’ve Been and Where We Have the Potential to Go Published In The Oxford Handbook of Music Therapy Publisher Oxford, United Kingdom
2013	Caring for Caregivers Published In Guidelines for Music Therapy Practice in Adult Medical Care Publisher Gilshum, United States

Conference Paper

Year	Title
2019	A look into the future: Priorities and opportunities for Australia’s PCOC Published In The Palliative Care Outcomes Collaboration Outcomes and Benchmarking Conference
2019	FinTech, HealthTech, RegTech...How is technology assisting the planning, funding and delivery of palliative care services? Published In The Palliative Care Outcomes Collaboration Outcomes & Benchmarking Conference
2019	Improving end-of-life choices for aged care residents: Delivering the right care, at the right time, in the right place and by the right people Published In The Palliative Care Outcomes Collaboration Outcomes & Benchmarking Conference
2018	Improving outcomes for aboriginal and torres strait Islander people with cancer through an optimal care pathway Published In ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY
2018	The lung cancer framework: Optimising lung cancer service delivery Published In ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY
2017	Principles for Best Practice Lung Cancer Care in Australia: Implementation of Evidence-Based Principles to Improve Outcomes Published In ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY
2016	How Empowering Is Hospital Care for Older Adults, and What Difference Does Palliative Care Make? A Cross-National Ethnography in England, Ireland and the USA Published In JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
2015	International advances in outcome measurement in palliative care: One step closer to cross-national comparisons of routinely collected outcome data in palliative care Published In 14th World Congress of the European Association for Palliative Care
2014	Integrating Preferences for End of Life Care in the Continuum of Cancer Care Published In PSYCHO-ONCOLOGY
2012	Music Therapy Assessment Tool For Low Awareness States (MATLAS): Establishing Reliability and Validity Published In BRAIN INJURY
2012	Towards Improving the Coordination of Care for People with Advanced Life-Threatening Diseases: A UK Mixed-Method Study Published In JOURNAL OF PALLIATIVE CARE
2010	A Comparative Two-Country Study to Determine Public Meanings and Priorities Regarding Provision of End-of-Life Care Published In JOURNAL OF PALLIATIVE CARE
2010	A Pan-European survey of public preferences and priorities for end of life care Published In EUROPEAN JOURNAL OF PUBLIC HEALTH
2010	An Evidence-Based Algorithm to Determine the Selection of a Corresponding Analytical Method for Cognitive Interview Data within Palliative Care Research Published In JOURNAL OF PALLIATIVE CARE
2008	Analysis of falls of patients in the later stages of Huntington's disease in a specialist unit Published In JOURNAL OF NEUROLOGY NEUROSURGERY AND PSYCHIATRY

Other Publications

Year	Title
2020	A profile of patients receiving palliative care in Australia for July – December 2019
2020	A profile of patients receiving palliative care in NSW and ACT for July – December 2019
2020	A profile of patients receiving palliative care in Queensland for July – December 2019
2020	A profile of patients receiving palliative care in South Australia for July – December 2019
2020	A profile of patients receiving palliative care in Victoria for July – December 2019
2020	A profile of patients receiving palliative care in Western Australia for July – December 2019
2020	Patient Outcomes in Palliative Care in Australia: National report for July – December 2019.
2020	Patient Outcomes in Palliative Care – NSW and ACT, July - December 2019.
2020	Patient Outcomes in Palliative Care – Queensland, July - December 2019.
2020	Patient Outcomes in Palliative Care – South Australia, July – December 2019
2020	Patient Outcomes in Palliative Care – Victoria, July to December 2019.
2020	Patient Outcomes in Palliative Care – Western Australia, July - December 2019
2019	A profile of patients receiving palliative care in Australia for January – June 2019
2019	A profile of patients receiving palliative care in NSW and ACT for January – June 2019
2019	A profile of patients receiving palliative care in Queensland for January – June 2019
2019	A profile of patients receiving palliative care in South Australia for January – June 2019
2019	A profile of patients receiving palliative care in Victoria for January – June 2019
2019	A profile of patients receiving palliative care in Western Australia for January – June 2019
2019	Patient Outcomes in Palliative Care in Australia: National report for January – June 2019
2019	Patient Outcomes in Palliative Care – NSW and ACT, January – June 2019
2019	Patient Outcomes in Palliative Care – Queensland, January – June 2019
2019	Patient Outcomes in Palliative Care – South Australia, January – June 2019
2019	Patient Outcomes in Palliative Care – Victoria, January – June 2019
2019	Patient Outcomes in Palliative Care – Western Australia, January – June 2019

Investigator On

Year	Title
2020 - 2023	Palliative Care Outcomes Collaboration Awarded by: Department of Health and Ageing (DoHA) Funding Scheme: Public Health and Chronic Disease Program
2012	C-CHANGE: Delivering high quality and cost-effective care across the range of complexity for those with advanced conditions in the last year of life Awarded by: National Institute for Health Research Funding Scheme: Program Grant

Other Research Activities

Singapore Health Director of team 2021
Health Promotion Administration - Ministry of Health and Welfare, Taiwan Director of team 2020

Available as Research Supervisor

Potential Supervision Topics

palliative care, end of life care

Advisees

Graduate Advising Relationship

Degree	Research Title	Advisee
Doctor of Philosophy	Development of a Classification Framework for Cross-national Comparisons of Service Capability for Meeting Palliative Care Needs	Clapham, Sabina
Doctor of Philosophy	Development of a clinical process and outcomes based evaluation model in a palliative care unit of a cancer hospital in Mainland China.	Dai, Yunyun

Reviewer Of

Australian Health Review (Journal)
BMC PRIMARY CARE (Journal)
BMC Palliative Care (Journal)
Disability and Rehabilitation (Journal)
JOURNAL OF PALLIATIVE MEDICINE (Journal)
PLOS ONE (Journal)
Supportive Care in Cancer (Journal)

Organizer Of Event

PCOC Outcomes & Benchmarking Conference 2019 2019

Professional Service Activities

Palliative Care Australia Program committee member 2020 - 2021
PCOC Outcomes & Benchmarking Conference 2019 Chair of the organising committee 2019
PCOC Outcomes & Benchmarking Conference 2019 Chair of the scientific committee 2019

Outreach And Community Service Activities

Killara Kids - not-for-profit Executive committee member 2020 - 2021

Education And Training

University of Manchester 2007 - 2008
D.Phil. 2002 - 2006
University of Melbourne 2003
B.M. in Music Therapy, University of Queensland 1990 - 1993
Trinity College of Music, London 1989

Credentials

Keywords

Palliative Care, End of Life Care, Health Services Research

Full Name

Barbara Alicia Daveson

Geographic Focus

Australia Country
International Transnational Region

Member Of

PCOC culturally and linguistically diverse - research group Chair and member 2022

Selected Publications

Journal Article

Year	Title
2022	Appetite-Related Distress Is Burdensome in the Last Sixty Days of Life of People Receiving Palliative Care: A National Longitudinal Consecutive Cohort Study Published In Journal of Palliative Medicine
2022	Preferences of Older People With a Life-Limiting Illness: A Discrete Choice Experiment Published In Journal of Pain and Symptom Management
2021	Patient-reported outcome measurement of symptom distress is feasible in most clinical scenarios in palliative care: An observational study involving routinely collected data Published In International Journal for Quality in Health Care
2021	Sleeping-related distress in a palliative care population: A national, prospective, consecutive cohort Published In Palliative Medicine
2021	The PCOC symptom assessment scale (SAS): A valid measure for daily use at point of care and in palliative care programs Published In PLoS ONE
2020	Associations between informal care costs, care quality, carer rewards, burden and subsequent grief: the international, access, rights and empowerment mortality follow-back study of the last 3 months of life (IARE I study) Published In BMC Medicine
2020	Drivers of care costs and quality in the last 3 months of life among older people receiving palliative care: A multinational mortality follow-back survey across England, Ireland and the United States Published In Palliative Medicine
2020	Optimal Cancer Care for Aboriginal and Torres Strait Islander People: A Shared Approach to System Level Change Published In JCO Global Oncology
2019	Patterns of emergency department attendance among older people in the last three months of life and factors associated with frequent attendance: a mortality follow-back survey Published In AGE AND AGEING
2018	A National Priority: Improving Outcomes for Aboriginal and Torres Strait Islander People With Cancer Through an Optimal Care Pathway Published In Journal of Global Oncology
2018	A framework for complexity in palliative care: A qualitative study with patients, family carers and professionals Published In Palliative Medicine
2018	How can a measure improve assessment and management of symptoms and concerns for people with dementia in care homes? A mixed-methods feasibility and process evaluation of ipos-dem Published In PLoS One
2018	Improving Outcomes Through Principles of Best Practice Management: Australia's National Lung Cancer Framework Published In Journal of Global Oncology
2018	Perspectives of patients, family caregivers and health professionals on the use of outcome measures in palliative care and lessons for implementation: a multi-method qualitative study Published In Annals of Palliative Medicine
2018	Recommendations to reduce inequalities for LGBT people facing advanced illness: ACCESSCare national qualitative interview study Published In Palliative Medicine
2018	Strategies to address the shortcomings of commonly used advanced chronic heart failure descriptors to improve recruitment in palliative care research: A parallel mixed-methods feasibility study Published In Palliative Medicine
2018	Understanding how a palliative-specific patient-reported outcome intervention works to facilitate patient-centred care in advanced heart failure: A qualitative study Published In Palliative Medicine
2017	Development of a caregiver-reported measure to support systematic assessment of people with dementia in long-term care: The Integrated Palliative care Outcome Scale for Dementia Published In Palliative Medicine
2017	Feasibility and acceptability of a patient-reported outcome intervention in chronic heart failure Published In BMJ Supportive & Palliative Care
2017	How empowering is hospital care for older people with advanced disease? Barriers and facilitators from a cross-national ethnography in England, Ireland and the USA Published In Age and Ageing
2017	Music Therapy Assessment Tool for Awareness in Disorders of Consciousness: Assessment of Awareness in DOC Published In Archives of Physical Medicine and Rehabilitation
2017	Professional Supervision as Storied Experience: Narrative Analysis Findings for Australian-Based Registered Music Therapists Published In Journal of Music Therapy
2017	Social and clinical determinants of preferences and their achievement at the end of life: prospective cohort study of older adults receiving palliative care in three countries Published In BMC Geriatrics
2016	'I'll be in a safe place': A qualitative study of the decisions taken by people with advanced cancer to seek emergency department care Published In BMJ Open
2016	'My body's falling apart.' Understanding the experiences of patients with advanced multimorbidity to improve care: Serial interviews with patients and carers Published In BMJ Supportive and Palliative Care
2016	EAPC White Paper on outcome measurement in palliative care: Improving practice, attaining outcomes and delivering quality services - Recommendations from the European Association for Palliative Care (EAPC) Task Force on Outcome Measurement Published In Palliative Medicine
2016	Effects of professional music therapy supervision on clinical outcomes and therapist competency: a systematic review involving narrative synthesis Published In Nordic Journal of Music Therapy
2016	Factors associated with aggressive end of life cancer care Published In Supportive Care in Cancer
2016	Measures to assess commonly experienced symptoms for people with dementia in long-term care settings: A systematic review Published In BMC Medicine
2016	Music therapy assessment tool for awareness in disorders of consciousness (MATADOC): Reliability and Validity of a measure to assess awareness in patients with disorders of consciousness Published In Journal of Music Therapy
2016	Of apples and oranges: Lessons learned from the preparation of research protocols for systematic reviews exploring the effectiveness of Specialist Palliative Care Published In BMC Palliative Care
2016	The effectiveness and cost-effectiveness of inpatient specialist palliative care in acute hospitals for adults with advanced illness and their caregivers Published In Cochrane Database of Systematic Reviews
2016	“I’ll be in a safe place”: a qualitative study of the decisions taken by people with advanced cancer to seek emergency department care Published In BMJ Supportive & Palliative Care
2016	“What makes it worth the investment to say it?” – Care experiences of lesbian, gay, bisexual and/or trans* people facing life-limiting illness: a qualitative interview study Published In BMJ Supportive & Palliative Care
2015	A Systematic Review of the Use of the Palliative Care Outcome Scale and the Support Team Assessment Schedule in Palliative Care Published In Journal of Pain and Symptom Management
2015	Capture, transfer, and feedback of patient-centered outcomes data in palliative care populations: Does it make a difference? A systematic review Published In Journal of Pain and Symptom Management
2015	Emergency department attendance by patients with cancer in the last month of life: a systematic review and meta-analysis Published In The Lancet
2015	Emergency department attendance by patients with cancer in their last month of life: A systematic review and meta-analysis Published In Journal of Clinical Oncology
2015	Results of a transparent expert consultation on patient and public involvement in palliative care research Published In Palliative Medicine
2015	The effectiveness and cost‐effectiveness of inpatient specialist palliative care in acute hospitals for adults with advanced illness and their caregivers Published In Cochrane Database of Systematic Reviews
2015	The gap between policy and practice: a systematic review of patient-centred care interventions in chronic heart failure Published In Heart Failure Reviews
2015	The need for palliative care in ireland: A population-based estimate of palliative care using routine mortality data, inclusive of nonmalignant conditions Published In Journal of Pain and Symptom Management
2014	"A quiet still voice that just touches": Music's relevance for adults living with life-threatening cancer diagnoses Published In Supportive Care in Cancer
2014	Avoid prognostic paralysis-just get ahead and plan and co-ordinate care Published In npj Primary Care Respiratory Medicine
2014	Choosing care homes as the least preferred place to die: A cross-national survey of public preferences in seven European countries Published In BMC Palliative Care
2014	Coordination of end-of-life care for patients with lung cancer and those with advanced COPD: Are there transferable lessons? A longitudinal qualitative study Published In Primary Care Respiratory Journal
2014	Learning from the public: Citizens describe the need to improve end-of-life care access, provision and recognition across Europe Published In European Journal of Public Health
2014	Music Therapy Assessment Tool for Awareness in Disorders of Consciousness (MATADOC): Standardisation of the principal subscale to assess awareness in patients with disorders of consciousness Published In Neuropsychological Rehabilitation
2014	Place and Cause of Death in Centenarians: A Population-Based Observational Study in England, 2001 to 2010 Published In PLoS Medicine
2014	Priorities for treatment, care and information if faced with serious illness: A comparative population-based survey in seven European countries Published In Palliative Medicine
2014	Public preferences and priorities for end-of-life care in Kenya: A population-based street survey Published In BMC Palliative Care
2014	The real-world problem of care coordination: A longitudinal qualitative study with patients living with advanced progressive illness and their unpaid caregivers Published In PLoS One
2014	The real-world problem of care coordination: a longitudinal qualitative study with patients living with advanced progressive illness and their unpaid caregivers Published In BMC Health Services Research
2013	'Burden to others' as a public concern in advanced cancer: A comparative survey in seven European countries Published In BMC Cancer
2013	Coordination of care for individuals with advanced progressive conditions: A multi-site ethnographic and serial interview study Published In British Journal of General Practice
2013	If you had less than a year to live, would you want to know? A seven-country European population survey of public preferences for disclosure of poor prognosis Published In Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer
2013	The selection and use of outcome measures in palliative and end-of-life care research: The morecare international consensus workshop Published In Journal of Pain and Symptom Management
2013	To be involved or not to be involved: A survey of public preferences for self-involvement in decision-making involving mental capacity (competency) within Europe Published In Palliative Medicine
2012	Are we heading in the same direction? European and African doctors' and nurses' views and experiences regarding outcome measurement in palliative care Published In Palliative Medicine
2012	Enhancing patient-reported outcome measurement in research and practice of palliative and end-of-life care Published In Supportive Care in Cancer
2012	Outcomes 'out of africa': The selection and implementation of outcome measures for palliative care in Africa Published In BMC Palliative Care
2012	Preferences for place of death if faced with advanced cancer: A population survey in England, Flanders, Germany, Italy, The Netherlands, Portugal and Spain Published In Annals of Oncology
2012	Public opinion on preferences and priorities for end-of-life care in sub-Saharan Africa: piloting a novel method of street surveying Published In BMJ Supportive and Palliative Care
2012	Republished: Which questions of two commonly used multidimensional palliative care patient reported outcome measures are most useful? Results from the European and African PRISMA survey Published In Postgraduate Medical Journal
2012	Supervision for music therapists: An Australian cross-sectional survey regarding views and practices Published In Australian Journal of Music Therapy
2012	Systematic Review of the Primary Research on Minority Ethnic Groups and End-of-Life Care From the United Kingdom Published In JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
2012	Which questions of two commonly used multidimensional palliative care patient reported outcome measures are most useful? Results from the European and African PRISMA survey Published In BMJ supportive & palliative care
2011	Co-ordination of generalist care for patients towards the end of life: a literature review Published In BMJ Supportive & Palliative Care
2011	Co-ordination of generalist end of life care in the UK: a multi-site ethnographic study Published In BMJ Supportive & Palliative Care
2011	Constructing understandings of end-of-life care in Europe: A qualitative study involving cognitive interviewing with implications for cross-national surveys Published In Journal of Palliative Medicine
2011	Implementing patient reported outcome measures (PROMs) in palliative care - users' cry for help Published In Health and Quality of Life Outcomes
2011	Investigating the dimension of time: Findings from a modified grounded theory study about clients' experiences and descriptions of temporality or time within music therapy Published In Journal of Music Therapy
2011	Music therapy methods with children, adolescents, and adults with severe neurobehavioral disorders due to brain injury Published In Music Therapy Perspectives
2011	Promoting supportive and palliative care research by a management fellow Published In BMJ Supportive & Palliative Care
2011	The PRISMA symposium 1: Outcome tool use. Disharmony in European outcomes research for palliative and advanced disease care: Too many tools in practice Published In Journal of Pain and Symptom Management
2011	The PRISMA symposium 4: How should Europe progress end-of-life and palliative clinical care research? Recommendations from the proceedings Published In Journal of Pain and Symptom Management
2010	An audit about music therapy assessments and recommendations for adult patients suspected to be in a low awareness state Published In Journal of Music Therapy
2010	Verständnis von ¿end of life care¿ in England und Deutschland ¿ eine qualitative Pilot-Studie Published In Zeitschrift für Palliativmedizin
2009	Book Reviews Published In Nordic Journal of Music Therapy
2009	Music: Promoting health and creating community in healthcare contexts Published In NORDIC JOURNAL OF MUSIC THERAPY
2008	Indigenous music therapy theory building through grounded theory research: The developing indigenous theory framework Published In Arts in Psychotherapy
2007	A project investigating music therapy referral trends within palliative care: An Australian perspective Published In Journal of Music Therapy
2007	Music Therapy Methods in Neuro-Rehabilitation: A Clinician's Manual Published In MUSIC THERAPY PERSPECTIVES
2007	The music therapy assessment tool for low awareness states Published In International Journal of Therapy and Rehabilitation
2004	Music therapy student supervision: Considering aspects of resistance and parallel processes in the supervisory relationship with students in final clinical placement Published In Arts in Psychotherapy
2002	A philosophical inquiry into the role of rhythm in music therapy Published In Arts in Psychotherapy
2001	A descriptive study exploring the role of music therapy in prisons Published In Arts in Psychotherapy
2001	Music Therapy and Childhood Cancer: Goals, Methods, Patient Choice and Control During Diagnosis, Intensive Treatment, Transplant and Palliative Care Published In Music Therapy Perspectives
2000	Music therapy in palliative care for hospitalized children and adolescents Published In Journal of Palliative Care
1998	A role for music therapy in special education Published In International Journal of Disability, Development and Education

Chapter

Year	Title
2016	Charting the Terrain of Grounded Theory Research in Music Therapy: Where We’ve Been and Where We Have the Potential to Go Published In The Oxford Handbook of Music Therapy Publisher Oxford, United Kingdom
2013	Caring for Caregivers Published In Guidelines for Music Therapy Practice in Adult Medical Care Publisher Gilshum, United States

Conference Paper

Year	Title
2019	A look into the future: Priorities and opportunities for Australia’s PCOC Published In The Palliative Care Outcomes Collaboration Outcomes and Benchmarking Conference
2019	FinTech, HealthTech, RegTech...How is technology assisting the planning, funding and delivery of palliative care services? Published In The Palliative Care Outcomes Collaboration Outcomes & Benchmarking Conference
2019	Improving end-of-life choices for aged care residents: Delivering the right care, at the right time, in the right place and by the right people Published In The Palliative Care Outcomes Collaboration Outcomes & Benchmarking Conference
2018	Improving outcomes for aboriginal and torres strait Islander people with cancer through an optimal care pathway Published In ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY
2018	The lung cancer framework: Optimising lung cancer service delivery Published In ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY
2017	Principles for Best Practice Lung Cancer Care in Australia: Implementation of Evidence-Based Principles to Improve Outcomes Published In ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY
2016	How Empowering Is Hospital Care for Older Adults, and What Difference Does Palliative Care Make? A Cross-National Ethnography in England, Ireland and the USA Published In JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
2015	International advances in outcome measurement in palliative care: One step closer to cross-national comparisons of routinely collected outcome data in palliative care Published In 14th World Congress of the European Association for Palliative Care
2014	Integrating Preferences for End of Life Care in the Continuum of Cancer Care Published In PSYCHO-ONCOLOGY
2012	Music Therapy Assessment Tool For Low Awareness States (MATLAS): Establishing Reliability and Validity Published In BRAIN INJURY
2012	Towards Improving the Coordination of Care for People with Advanced Life-Threatening Diseases: A UK Mixed-Method Study Published In JOURNAL OF PALLIATIVE CARE
2010	A Comparative Two-Country Study to Determine Public Meanings and Priorities Regarding Provision of End-of-Life Care Published In JOURNAL OF PALLIATIVE CARE
2010	A Pan-European survey of public preferences and priorities for end of life care Published In EUROPEAN JOURNAL OF PUBLIC HEALTH
2010	An Evidence-Based Algorithm to Determine the Selection of a Corresponding Analytical Method for Cognitive Interview Data within Palliative Care Research Published In JOURNAL OF PALLIATIVE CARE
2008	Analysis of falls of patients in the later stages of Huntington's disease in a specialist unit Published In JOURNAL OF NEUROLOGY NEUROSURGERY AND PSYCHIATRY

Other Publications

Year	Title
2020	A profile of patients receiving palliative care in Australia for July – December 2019
2020	A profile of patients receiving palliative care in NSW and ACT for July – December 2019
2020	A profile of patients receiving palliative care in Queensland for July – December 2019
2020	A profile of patients receiving palliative care in South Australia for July – December 2019
2020	A profile of patients receiving palliative care in Victoria for July – December 2019
2020	A profile of patients receiving palliative care in Western Australia for July – December 2019
2020	Patient Outcomes in Palliative Care in Australia: National report for July – December 2019.
2020	Patient Outcomes in Palliative Care – NSW and ACT, July - December 2019.
2020	Patient Outcomes in Palliative Care – Queensland, July - December 2019.
2020	Patient Outcomes in Palliative Care – South Australia, July – December 2019
2020	Patient Outcomes in Palliative Care – Victoria, July to December 2019.
2020	Patient Outcomes in Palliative Care – Western Australia, July - December 2019
2019	A profile of patients receiving palliative care in Australia for January – June 2019
2019	A profile of patients receiving palliative care in NSW and ACT for January – June 2019
2019	A profile of patients receiving palliative care in Queensland for January – June 2019
2019	A profile of patients receiving palliative care in South Australia for January – June 2019
2019	A profile of patients receiving palliative care in Victoria for January – June 2019
2019	A profile of patients receiving palliative care in Western Australia for January – June 2019
2019	Patient Outcomes in Palliative Care in Australia: National report for January – June 2019
2019	Patient Outcomes in Palliative Care – NSW and ACT, January – June 2019
2019	Patient Outcomes in Palliative Care – Queensland, January – June 2019
2019	Patient Outcomes in Palliative Care – South Australia, January – June 2019
2019	Patient Outcomes in Palliative Care – Victoria, January – June 2019
2019	Patient Outcomes in Palliative Care – Western Australia, January – June 2019

Investigator On

Year	Title
2020 - 2023	Palliative Care Outcomes Collaboration Awarded by: Department of Health and Ageing (DoHA) Funding Scheme: Public Health and Chronic Disease Program
2012	C-CHANGE: Delivering high quality and cost-effective care across the range of complexity for those with advanced conditions in the last year of life Awarded by: National Institute for Health Research Funding Scheme: Program Grant

Other Research Activities

Singapore Health Director of team 2021
Health Promotion Administration - Ministry of Health and Welfare, Taiwan Director of team 2020

Potential Supervision Topics

palliative care, end of life care

Advisees

Graduate Advising Relationship

Degree	Research Title	Advisee
Doctor of Philosophy	Development of a Classification Framework for Cross-national Comparisons of Service Capability for Meeting Palliative Care Needs	Clapham, Sabina
Doctor of Philosophy	Development of a clinical process and outcomes based evaluation model in a palliative care unit of a cancer hospital in Mainland China.	Dai, Yunyun

Reviewer Of

Australian Health Review (Journal)
BMC PRIMARY CARE (Journal)
BMC Palliative Care (Journal)
Disability and Rehabilitation (Journal)
JOURNAL OF PALLIATIVE MEDICINE (Journal)
PLOS ONE (Journal)
Supportive Care in Cancer (Journal)

Organizer Of Event

PCOC Outcomes & Benchmarking Conference 2019 2019

Professional Service Activities

Palliative Care Australia Program committee member 2020 - 2021
PCOC Outcomes & Benchmarking Conference 2019 Chair of the organising committee 2019
PCOC Outcomes & Benchmarking Conference 2019 Chair of the scientific committee 2019

Outreach And Community Service Activities

Killara Kids - not-for-profit Executive committee member 2020 - 2021

Education And Training

University of Manchester 2007 - 2008
D.Phil. 2002 - 2006
University of Melbourne 2003
B.M. in Music Therapy, University of Queensland 1990 - 1993
Trinity College of Music, London 1989

Credentials

Keywords

Palliative Care, End of Life Care, Health Services Research

Full Name

Barbara Alicia Daveson

Geographic Location

Sydney Campus

Located In Facility

Australian Health Services Research Institute

Orcid Id

http://orcid.org/0000-0001-8039-8749 (confirmed)

Web Of Science Researcher Id

AAO-5876-2021

Scopus Id

6507948575

Overview

Overview

Research Areas

Geographic Focus

Available as Research Supervisor

Affiliation

Available for Collaborative Projects

Member Of

Publications

Selected Publications

Journal Article

Chapter

Conference Paper

Other Publications

Funding

Investigator On

Other Research Activities

Supervision

Available as Research Supervisor

Potential Supervision Topics

Advisees

Graduate Advising Relationship

Service

Reviewer Of

Organizer Of Event

Professional Service Activities

Outreach And Community Service Activities

Background

Education And Training

Credentials

Keywords

Contact

Full Name

Geographic Location

Located In Facility

Identity

Orcid Id

Web Of Science Researcher Id

Scopus Id

Overview

Research Areas

Geographic Focus

Affiliation

Member Of

Publications

Selected Publications

Journal Article

Chapter

Conference Paper

Other Publications

Funding

Investigator On

Other Research Activities

Supervision

Potential Supervision Topics

Advisees

Graduate Advising Relationship

Service

Reviewer Of

Organizer Of Event

Professional Service Activities

Outreach And Community Service Activities

Background

Education And Training

Credentials

Keywords

Contact

Full Name

Geographic Location

Located In Facility

Identity

Orcid Id

Web Of Science Researcher Id

Scopus Id

Visualisations

Research Areas

Geographic Focus